Information Sites
Governmental Agencies
California State Department of Developmental Services State Department
Organization of
Area Boards
California
Mental Health & Developmental Disabilities Center (MHDDC),
a joint project of the UCLA University Affiliated Program (UAP)
and the California State Council on Developmental Disabilities.
Providing information to Regional Center Staff, Developmental Disability
Service Providers, Mental Health Service Providers, and Regional
Center Consumers & Families
Federal Interagency
Coordinating Council (FICC) provides a useful storehouse of
information for parents of children with disabilities, focusing
on the efforts of the Federal Interagency Coordinating Council (FICC).
The council facilitates federal, state and local activities related
to serving infants, toddlers, and preschoolers, from birth through
age 5, who receive services under the Individuals with Disabilities
Education Act (IDEA), as well as other federally funded programs
such as health care, child care and social services.
Los Angeles
County Department of Health Services provides a wealth of health
information including the availability of services and state of
the art strategies for improving the health of all Angelenos.
Other sites
211 L.A. County - Call 211 is a dedicated service that provides an easy-to-use, caring, professional source of guidance, advocacy, and 24 hours 7 days per week access to a comprehensive range of human services to the people of Los Angeles County.
Allen,
Shea & Associates Index to services and links to other sites
American Red Cross of Santa Monica - Here is the link to your
Local Santa Monica Chapter of the American Red Cross.
The ARC Home page
for the national organization of ARC. Good links to other DD sites.
Ask LILA is
a maproom and resource directory including services for persons
with developmental disabilities in the LA County area
Autism Society of America
Autism Spectrum Therapies - This website has information about what they do, what autism is, upcoming events and workshops, and more.
Autism Education Network is where you may find information about special education reform. It's also a site that empowers families and professionals serving the autism community to voice opinions and advocate change.
Best Buddies
International headquarters of the program that link volunteers with
people with mental retardation
CADartists
An organization dedicated to assisting disabled children and young
adults express themselves through computer art. Gift shop is available.
Complete
Access is an organization that adapts vans and equipment for
the disabled and has adapted rental equipment available. They also
provide remodeling services to make homes more accessible. Complete
Access accepts many private insurances and are awaiting Medicare
approval.
Connection for
Children - This is a non-profit Child Care Resource and Referral
agency serving child care providers, educators, and parents in the
West Los Angeles and South communities. Connections For Children
has linked children's advocates, service providers, and parents
about issues affecting children and families for over 25 years.
Discover
Technology This site is devoted to sharing information that
is pertinent to persons with disabilities and those professionals
who provide services. Here you will find a comprehensive list of
links, art, information, and software. You can also order software
and hardware in their Internet Web Catalogue.
Down syndrome
- NDSS works every day to increase public awareness about Down syndrome
and discover its underlying causes through research, education and
advocacy.
Down Syndrome Association of Los Angeles - The DSALA is here to enhance the welfare of people with Down Syndrome and their families through the development and promotion of education, counseling, employment and recreational programs and to increase public awareness, understanding and acceptance of Down Syndrome.
E-Subjects:
For Teachers, Students and Parents "This site is the development
of a special education teacher. It provides special education teachers
with access to tried and proven curriculum; helps students learn
new skills and provides parents with a forum to discuss concerns
and ideas."
The Epilepsy Foundation - The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences and will prevent, control and cure epilepsy though research, education, advocacy, and services. This site has general information on epilepsy as well as information on research, programs, and advocacy.
Family Village
A global community that integrates information, resources, and communication
opportunities on the Internet for persons with mental retardation
and other disabilities, their families, and those that provide them
services and supports.
Fragile X Syndrome Support
and research regarding Fragile X syndrome
Funeral Consumers Alliance of Los Angeles - For over 45 years, the Funeral Consumers Alliance of Los Angeles (formerly know as the Los Angeles Funeral Society) has existed as a nonprofit, volunteer organization, dedicated to the consumer's right to choose a meaningful, dignified, affordable funeral.
HalfthePlanet.com
is a website that serves as the leading Internet gateway for people
whose personal and professional lives are touched by disability.
It's designed to offer the widest possible range of online services
to people with disabilities, their families, friends and associates
Health Notes - Care
of Children & Adults with Developmental Disabilities
Healthy City - Healty City's mission is to improve the ability of low income, underserved children, adolescents, and their families to access services and advocate for critical resources in their neighborhoods and communities.
The Help
Group provides innovative and comprehensive special education
an therapeutic programs. The Help Group has been dedicated to serving
young people with special needs related to autism, Asperger's Disorder,
learning disabilities, emotional development, mental retardation,
and abuse and neglect.
March of Dimes
- Improving the health of babies by preventing birth defects and
infant mortality. The March of Dimes carries out this mission through
programs of research, community services, education and advocacy.
Mental
Health Matters - User-friendly directory for mental health professionals,
consumer, and their families. Highly selective listings.
The M.I.N.D. Institute – The MIND Institute, which stands for Medical Investigation of Neurodevelopmental Disorders, is an international, multidisciplinary research organization, committed to excellence, collaboration and hope, striving to understand the causes and develop better treatments and ultimately cures for neurodevelopmental disorders. Standing shoulder to shoulder, families, scientists, physicians, educators, and administrators are working together to unlock the mysteries of the mind.
My Handi-Capable Reporter
A newsletter whose motto is "Changing pessimism to optimism".
Includes timely, interesting information for the Los Angeles area
and the world regarding the everyday needs of handi-capable people.
Neonatology
on the Web - Internet Resources for Neonatal-Perinatal Medicine
NORD -
National Organization for Rare Disorders, Inc.
NICHCY - The
National Information Center for Children and Youth with Disabilities
Points
of Pediatric Interest Pedinfo
- An Index of the Pediatric Internet Resources
Pediatric
Database - Descriptions of over 550 childhood illnesses
Parents Helping Parents
A parent directed Family Resource Center for families having children
with special needs. They have an excellent BBS with resource information
and some good links to general parent support sites.
Professional
Fit is a clothing company that specializes in adaptations of
fashionable and reasonably priced clothing items and accessories
for individuals with developmental disabilities.
Saint John's Health
Center provides information about Health & Wellnes, Patient
& Physcian Information, Special Events, and Volunteer Opportunities.
Santa Monica Public
Library - Find out more on what the Santa Monica Public has
to offer.
Santa Monica-Malibu
School District - You can stay up date to their on going Board
Meetings and Special Events.
The Safety Net
- This web site is dedicated to the dissemination of information
on the prevention and mitigation of risk
factors for persons with developmental disabilities. The site includes
information from across the nation on current research and best
practices
and practical information directed towards improving consumers'
health and safety and insuring their protection from harm. Links
to other web sites
with information on risk management and prevention are also provided.
The Sibling Support
Project is a national program dedicated to the interests of
brothers and sisters of people with special health and developmental
needs. The project is based at Children's Hospital and Regional
Medical Center in Seattle, Washington.
SpecialKidsLA
is a website that provides information to parents of special needs
children in the Los Angeles Area. Information is provided about
some early start programs. There is also information about the IEP
process. A calendar of events, a monthly email newsletter and a
news section of current special needs articles is also available.
TAP (The Autism Perspective) is a magazine site about options. TAP will educate its readership. It provides balanced information on the myriad of therapies and treatments for the vast and complicated realm of autism spectrum disorders, recognizing that effective therapies are equally as complex. This is a site where voices can heard, where stories can be shared.
The University Affiliated Program at the University of California,
Los Angeles (UCLA UAP) has two web sites which are of interest to
the Development Disability community:California
Developmental Disabilities Network andWomen
with Developmental Disabilities- The first has an extensive
database of resources in California and includes a search program
for specific types and locations of services.
UCLA/Orthopaedic Hospital - The UCLA/Orthopaedic Hospital Center for Cerebral Palsy is dedicated to improving function in children and adults with cerebral palsy through a program of timely diagnosis, comprehensive assessment and individulized treatment.
UCLA Center for Autism Research and Treatment -
The central theme of the UCLA Center involves understanding the origins of social, communicative, and language deficits demonstrated by individuals with autism. A second theme is a focus on the design and testing of experimental treatment interventions.
Venice
Family Clinic - As one of the largest free clinics in the United
States, the Venice Family Clinic serves as a beacon of hope and
healing for low income families. Find out about services and events.
Waisman
Center University of Wisconsin - Madison. Extensive link to
WWW sites related to MR and DD
WestEd
- WestEd's Center for Prevention & Early Intervention provides
nationally-recognized training, technical assistance and resources
for successful education, special
education, early intervention, and child care.
Westside Women's
Health Center - The Westside Women's Health Center offers a
preventive and education-base approach to providing health care
for at-risk women and their families.
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